Way back in December, I shared a little about my experience as a parent representative at the Pediatric Cardiac Intensive Care Society’s Annual Meeting in Miami. As anyone who has been a patient advocate at a medical conference knows there were many great experiences, (see my quick recap below) and there were frustrating experiences. That’sContinue reading “Family Centred Care”
Category Archives: Our Hospital Story
Sharing Our Hearts
Photography and storytelling has been a major part of my own personal mental health and healing journey since becoming a medical mom. By documenting my life through my words and my images, I share what is happening in my world for others to see — our family members and other families. My hope is other familiesContinue reading “Sharing Our Hearts”
Click With Kids: Scavenger Hunt
“Mom, can we go for a stroll?” I know Kane is sick of sitting in a hospital bed when he says something like that! For those of you who don’t know things went a little sideways after Kane’s surgery at the beginning of April. If you are thinking, “WHAT?! Kane had surgery?! Was it hisContinue reading “Click With Kids: Scavenger Hunt”
Together – A Day at the Hospital
So Kane wants to write (another) book… As you have probably gathered the setting is at the hospital, in this case the Alberta Children’s Hospital. Mom: “Who are the characters?”Kane: “Me, you and the doctors…and nurses…every one of them.” Mom: “Why are we writing the book?”Kane: “For children and cause I’m making a little bookshop.”Continue reading “Together – A Day at the Hospital”
Tell Your Story: Sharing My Heart
Sharing your story is something each and every one of us can do. You can do it for yourself. You can do it to educate or inform others. However you choose to tell your story, just the act of telling it can help you to heal. I tell our story with my camera. The dayContinue reading “Tell Your Story: Sharing My Heart”
Personal Project: Back to Reality
Kane and I were at the Alberta Children’s Hospital this week for his dental surgery. His surgery was cancelled in April due to COVID, but because of his heart issues he was a high priority. It felt a bit strange to be there because of the fact that every one of Kane’s other five surgeriesContinue reading “Personal Project: Back to Reality”
Essential Medical Appointments
Once it became clear just how important physical distancing and flattening the curve were to curbing the spread of COVID-19 many of my son Kane’s medical and dental appointments were cancelled. The first to get bumped was a neuro-developmental assessment. Then we got a call from Kane’s pediatric dentist office saying his dental surgery wasContinue reading “Essential Medical Appointments”
CT Story
Waiting…Kane and I are experts at waiting. Waiting at an appointment. Waiting for an answer. Waiting to play a game (because mom won’t let you have screen time the majority of the time you are waiting!) We are pretty good at bringing things to do while we are waiting. For me, it’s my camera. ThisContinue reading “CT Story”
Just Another Day
Life with a medical kid is interesting. There are times where our family is pretty normal, well, you know, as normal as any family is! And then there are times where it feels like the medical appointments and discussions about challenges and where to go next take over. We are in that right now. InContinue reading “Just Another Day”
Why Medical Families?
This is me…well, the me of 4 years ago. This is also me…a more recent version of me. I am a medical mom. I am an advocate. I am a storytelling photographer. I share the story of our lives.Partly, so our family can see us.Partly, so other families can see themselves.But mostly for me, becauseContinue reading “Why Medical Families?”