In the world of healthcare, storytelling has become an integral tool for communication, advocacy, and education. This becomes even more crucial in the realm of rare diseases, where each family’s journey is unique and laden with profound insights and experiences. Our recent podcast episode features Krystle Schofield, a Common Language Digital Storytelling facilitator, who offersContinue reading “Leading Through Stories: Empowering Rare Disease Families”
Category Archives: You’re Here for a Reason
Family Centred Care
Way back in December, I shared a little about my experience as a parent representative at the Pediatric Cardiac Intensive Care Society’s Annual Meeting in Miami. As anyone who has been a patient advocate at a medical conference knows there were many great experiences, (see my quick recap below) and there were frustrating experiences. That’sContinue reading “Family Centred Care”
Home
Tonight, I find myself thinking about the word, home. About what it means. About where it can be and who needs to be there. I’ve thought about writing this blog so many times, I actually started writing this in February, but late on a Saturday night the perfect storm of inspiration hit. Quite a fewContinue reading “Home”
Guest Blog: Rett Syndrome Awareness
In honour of Rett Syndrome Awareness Month, my good friend and fellow medical mom, Melanie Birch has written a guest blog. Last spring, our family spent four weeks helping teach our daughter, Ella, how to ski. Her instructors were from an incredible organization called Rocky Mountain Adaptive. To be clear, they did the teaching. OurContinue reading “Guest Blog: Rett Syndrome Awareness”
I Believe – A Digital Story
One of my all time favourite images is the one you see when you first land of my website. The image is of a baby in an NICU isolette. My eyes are always drawn to all the hands and contact points between mother and baby. I find myself then looking at the NG tube andContinue reading “I Believe – A Digital Story”
College of Canadian Family Physicians
A few months ago I received an email that said, “On behalf of the College of Family Physicians of Canada, I am writing to ask if you would like to participate in Canadian Family Physician’s (CFP) Cover Project for our upcoming July 2021 issue. We look for artists within Canada and in family medicine whoContinue reading “College of Canadian Family Physicians”
I Was There Too: Rachel Martens
I Was There Too is a series of conversations I am having with other medical moms and photographers who are telling stories of life for families with medical complexities. Meet Rachel Martens. Here’s a little intro in Rachel’s own words, “I’ve been married to my wonderful spouse Nick for 17 years. I’m mom to aContinue reading “I Was There Too: Rachel Martens”
Throwback Post: Gratitude
Two different times today the idea of positive psychology cropped up in my life. The first was during a conversation I had with Lorraine Widmer, who is running Grapes + Gratitude, about writing gratitude letters. The second was while listening to a What’s Your Grief‘s podcast episode titled Positive Psychology, Grief and PERMA, which talksContinue reading “Throwback Post: Gratitude”
I Was There Too: Ali Martens
I Was There Too is a series of conversations I am having with other medical moms and photographers who are telling stories of life for families with medical complexities. Meet Ali Martens. I first met Ali in real life at the Children’s Healthcare Canada Conference last December. Ali is one tough medical mama and IContinue reading “I Was There Too: Ali Martens”
World Mental Health Day
October 10th is World Mental Health Day. We need to talk openly about suicide. We need to share stories and educate our communities. We need to ensure that every single person knows how to access the resources available. If you or anyone you know is feeling suicidal know there are people who care and canContinue reading “World Mental Health Day”