In the world of healthcare, storytelling has become an integral tool for communication, advocacy, and education. This becomes even more crucial in the realm of rare diseases, where each family’s journey is unique and laden with profound insights and experiences. Our recent podcast episode features Krystle Schofield, a Common Language Digital Storytelling facilitator, who offersContinue reading “Leading Through Stories: Empowering Rare Disease Families”
Category Archives: Stories and Advocacy
Home
Tonight, I find myself thinking about the word, home. About what it means. About where it can be and who needs to be there. I’ve thought about writing this blog so many times, I actually started writing this in February, but late on a Saturday night the perfect storm of inspiration hit. Quite a fewContinue reading “Home”
I Was There Too: Rachel Martens
I Was There Too is a series of conversations I am having with other medical moms and photographers who are telling stories of life for families with medical complexities. Meet Rachel Martens. Here’s a little intro in Rachel’s own words, “I’ve been married to my wonderful spouse Nick for 17 years. I’m mom to aContinue reading “I Was There Too: Rachel Martens”
I Was There Too: Ali Martens
I Was There Too is a series of conversations I am having with other medical moms and photographers who are telling stories of life for families with medical complexities. Meet Ali Martens. I first met Ali in real life at the Children’s Healthcare Canada Conference last December. Ali is one tough medical mama and IContinue reading “I Was There Too: Ali Martens”
World Mental Health Day
October 10th is World Mental Health Day. We need to talk openly about suicide. We need to share stories and educate our communities. We need to ensure that every single person knows how to access the resources available. If you or anyone you know is feeling suicidal know there are people who care and canContinue reading “World Mental Health Day”