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Leading Through Stories: Empowering Rare Disease Families

In the world of healthcare, storytelling has become an integral tool for communication, advocacy, and education. This becomes even more crucial in the realm of rare diseases, where each family’s journey is unique and laden with profound insights and experiences. Our recent podcast episode features Krystle Schofield, a Common Language Digital Storytelling facilitator, who offersContinue reading “Leading Through Stories: Empowering Rare Disease Families”

21 Weeks: Stories & Advocacy

As a storytelling photographer, it is my goal to make documentary family photography accessible for all medical, special needs, and palliative families. As an educator, medical mom and advocate, my goal is to offer my voice to those working to ensure our government is providing ALL families with appropriate access to education and healthcare. PerhapsContinue reading “21 Weeks: Stories & Advocacy”