In the world of healthcare, storytelling has become an integral tool for communication, advocacy, and education. This becomes even more crucial in the realm of rare diseases, where each family’s journey is unique and laden with profound insights and experiences. Our recent podcast episode features Krystle Schofield, a Common Language Digital Storytelling facilitator, who offersContinue reading “Leading Through Stories: Empowering Rare Disease Families”
Tag Archives: Rare Disease
Guest Blog: Rett Syndrome Awareness
In honour of Rett Syndrome Awareness Month, my good friend and fellow medical mom, Melanie Birch has written a guest blog. Last spring, our family spent four weeks helping teach our daughter, Ella, how to ski. Her instructors were from an incredible organization called Rocky Mountain Adaptive. To be clear, they did the teaching. OurContinue reading “Guest Blog: Rett Syndrome Awareness”