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Family Centred Care

Way back in December, I shared a little about my experience as a parent representative at the Pediatric Cardiac Intensive Care Society’s Annual Meeting in Miami. As anyone who has been a patient advocate at a medical conference knows there were many great experiences, (see my quick recap below) and there were frustrating experiences. That’sContinue reading “Family Centred Care”

The Big Reveal – The Journey of a First-Time Storyteller (Part 3)

Since posting Part 1 and Part 2 of The Journey of a First-Time Storyteller on my blog, I’ve had several conversations with people who want to learn more about digital storytelling. Much like Tina Antrobus, who was featured in those earlier blogs and whose digital story was screened recently at artsPlace, they’re curious to learnContinue reading “The Big Reveal – The Journey of a First-Time Storyteller (Part 3)”

Home

Tonight, I find myself thinking about the word, home. About what it means. About where it can be and who needs to be there. I’ve thought about writing this blog so many times, I actually started writing this in February, but late on a Saturday night the perfect storm of inspiration hit. Quite a fewContinue reading “Home”

RAW Podcast with Sarah Freeman

Best podcast intro EVER… “Kristy is this incredible woman. She just has this way about herself, this no bullshit way. She’s direct, but it’s beautiful and I love her for that. I hope you get the chance to sit down and talk with Kristy. She has a beautiful heart and she has lots to shareContinue reading “RAW Podcast with Sarah Freeman”

Leading Through Stories: Tell Your Story

We have all experienced meaningful moments in our lives that have transformed us. Although each of these stories is unique to us, the impact and lessons we learn are often universal. That is why story creates connection and builds relationships. Sharing these stories gives us the opportunity to not only support ourselves through these experiences,Continue reading “Leading Through Stories: Tell Your Story”

Sharing Our Hearts

Photography and storytelling has been a major part of my own personal mental health and healing journey since becoming a medical mom. By documenting my life through my words and my images, I share what is happening in my world for others to see — our family members and other families. My hope is other familiesContinue reading “Sharing Our Hearts”

I Believe – A Digital Story

One of my all time favourite images is the one you see when you first land of my website. The image is of a baby in an NICU isolette. My eyes are always drawn to all the hands and contact points between mother and baby. I find myself then looking at the NG tube andContinue reading “I Believe – A Digital Story”

I Was There Too: #TuckerStrong

I Was There Too is a series of conversations I am having with photographers and medical families who are telling stories of life (and sometimes death) for families with medical complexities. Meet Mark and Megan Hewson. And their son, Tucker. I happened to meet Mark and Megan at the Treasure Life beads table outside theContinue reading “I Was There Too: #TuckerStrong”

I Was There Too: Judy Dahl

I Was There Too is (usually) a series of conversations I am having with photographers and medical moms who are telling stories of life for families with medical complexities. This week, in honour of Heart Day and CHD awareness week I chatted with the Child Life Specialist who supported Kane and our family during hisContinue reading “I Was There Too: Judy Dahl”

I Was There Too: Kelly Marleau

I Was There Too is a series of conversations I am having with photographers and medical moms who are telling stories of life for families with medical complexities. This time I am talking with an Edmonton based photographer who has told our family’s story. Meet Kelly Marleau of Fiddle Leaf Photography. I originally met KellyContinue reading “I Was There Too: Kelly Marleau”